Disabled Online Users Association - DOUA
When I became seriously ill about 4 years ago I was unable to work any longer. I tried to by first giving up one part time job, then the other. Both of these were in my given field which was Social Work in a health care environment.
I held onto my full time job as long as I could. It was a telecommuting job as a Customer Service Rep. I ended up really enjoying it plus the perks were out of this world. I could work basically any hours (I did have to make phone calls to retail stores during normal business hours, but the other time was my own to decide when to use it), I could nurse my infant, not put her in daycare, be home when my older daughter came home from school and go to school events. I also didn’t need to drive anywhere, saving gas money, didn’t need a work wardrobe, saving lots of money and didn’t need to eat lunch out as I often did when I worked away from home.
My supervisors were very understanding when I got the diagnosis of Myasthenia Gravis. They allowed me more time off for doctor’s appointments, understood if I didn’t get something accomplished on time like I normally would and just “got it”.
But as my muscular weakness progressed, I had issues talking on the phone. I had store managers think I was drunk due to my slurred speech, the employees and even my supervisors couldn’t understand me. I became so fatigued that I made errors and lots of them.
I worked and then slept. That was my day. Nothing else was done. I could barely care for my then toddler. I ended up having to have a caregiver come to our home to watch her. The stress was making the disease worse.
I’ve often heard it said that men identify themselves by their work. But I did too. When I realized I couldn’t work any more, it was one of the hardest decisions to make. I felt like a nothing. I remember going to a counselor and telling her that I viewed myself as a “slob”.
About 6 months later I found DOUA. This is a non-profit group that helps people with any type of disABILITY to learn how to sell online. I just wanted to do something, anything that felt like work! I joined and sold some things from around my house.
I loved this place. It’s not only a teaching site, but a support group too. The little I learned started to help me gain back some of my confidence. I became a grad student after selling 5 items on eBay. Then I was asked to be a mentor. This was such a shock to me!
I still had the mindset that I couldn’t learn so how could I teach. Marjie Smith, the founder and Executive Director, told me that I could help people by being like a cheerleader for them. Giving them a push to strive for more.
I’m happy to say that although it’s taken me years, I’ve kinda sorta got a feel for html. I helped make my own website. I have an eBay store and two blogs. I can get around the internet and join message boards and places like Stumble Upon, Mosaic, My Space, etc.
DOUA gets the job done. It is my favorite non-profit organization because it gives “a hand up not a hand out”.








Awesome job! I REALLY like what you’ve done here! I also want to say that you have been a great cheerleader for me, as well. I should have guessed you had a background in social work. People in that field are always a breed apart. My aunt is a social worker for a hospital, too. She’s been so for as long as I can remember and has always loved her work.
Thank you for the link. I’ve been having a really hard time working full time lately, and I’ve been looking for resources like this one.
I am going to check out that link. I can’t work anywhere that would actually hire a student, because I can’t do shift work or anything like that. It really sucks. I attempted to work at Tim Hortons and Wendy’s, but the results weren’t very good. I did have an awesome job as a summer student at a recreational group for developmentally handicapped adults, but that is only during the summer. I need a source of income now that I’m in college and broke, so thank you very much for the link!
By the way, I’m currently enrolled in the Social Service Worker program. I never really thought about taking my medical condition into consideration when I decided this was what I wanted to do. Would you say this impacts the job a lot?
I’d say that it depends on what type of Social Work you plan to do
Jessica. I was always in the medical field. When I became
chronically ill, I was driving for my SW jobs. That was difficult
due to the Myasthenia Gravis.
Take into consideration your limitations and what you want to do.
Being happy and content can make us feel better too! I wish you well
in whatever you choose to do.
Great advice Connie!!
By the way, I was trying to find that welcome thread you mentioned on DOUC. I couldn’t find it anywhere! I’m still not used to navigating that site!
*DOUA sorry!!
[...] post on DOUA led to new members joining as students. That’s another goal of mine - to inform [...]