My visit to the MDA clinic went smoothly. My dear doc is awesome as always. He wants me to continue on my current meds (Mestinon and Cellcept). He’s hoping when the weather gets cooler here I may be able to lower the Mestinon dosage. But it’s a wait and see issue. I call him if I feel that my current dose is too much.

The most important thing we talked about was how I have good days and then really bad days. Doctor Weiss explained that although my strength now is pretty good, my stamina is my problem.

He asked me if I overdo it and then pay the price. Before I could answer Hubby said he got it perfectly right. Well why not do one third of what you do each day then? Well I don’t have that turn off switch in my brain doc! I’m a Type A personality. I do it all, full strength ahead. Not too smart but believe me I was talking to the doctor who is according to him, Triple A personality.

When will I learn that balance? Have any of you with chronic illnesses gotten it?