Myasthenia Gravis and The Heat

Posted by Connie on Sunday, April 20th, 2008 at 8:25 pm and is filed under Family Life, Healthy or Not.
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beat the heat
Having Myasthenia Gravis and living in Florida pose a huge problem. Since the temperature is often in the 80′s beginning as early as April, staying out of the heat is difficult. You see one of the things that makes MG symptoms worse is heat. Even walking outside to get into an air conditioned car can cause problems. I do try my best to remain in air conditioned buildings and cars.

Even doing that may not be enough. My neurologist tells me that just feeling that blast of heat for a few minutes can cause me to not feel well. He says that he gets more phone calls, emergency appointments and emergency room visits as the weather gets hotter.

There’s so many things that I miss doing in the “summer” in Florida. I miss the beach. If I go I have to have a place nearby where I can get cooled off quickly, so that means not using public beaches. I miss sitting taking my daughter to the park so she can play on the swing sets. I miss going for walks. I miss going to Disney World during the days in the summer.

My attitude has been and will always be though, that although there are things I can’t do, I will focus on what I can. Five years ago, I couldn’t even get out of bed. I was unable to do most anything. The MG is under control now so I’m grateful for that!

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  1. I can empathize with your condition. I’ve got a similar, although opposite condition (Chronic Idiopathic Cold Urticaria). I can’t be exposed to any cold air or wind, otherwise I have a severe inflammatory reaction, which in the worst case can cut off my lungs and squash my heart! Anaphylactic shock I think they call it.

    So yes, I too focus on what I can do. Don’t forget, you’re not alone!

    comment by Matt — April 21, 2008 @ 5:29 pm
  2. Just curious…how did you get your MG under control? Are you male or female? Did you have your daughter after your diagnosis?

    comment by Laurie — April 21, 2008 @ 8:11 pm

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