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Rag Doll Myasthenia Gravis Symptoms

Posted by Connie on Sunday, May 25th, 2008 at 7:14 pm and is filed under Chronic Illness, Family Life.
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I’ve been very weak and sleepy for over a week now, but it’s been much worse these last few days. I call it feeling like a rag doll. These are the symptoms I get from Myasthenia Gravis. I can’t tell you how many hours I sleep, or even how when I wake up I end up falling asleep again. I can’t even fight it.

It is a terrible feeling. The thing that upsets me the most is not being aware of what’s going on around me. My poor daughter has been pretty much without a mother for the last few weeks. I drive her to and from school, barely. But as for anything else, she’s on her own. My husband of course has his full time job and then another one when he gets home. He feels as if he’s going round and round on fitness equipment, like a treadmill and not getting anywhere.

I’m hoping that these symptoms get better soon so I can get back to living the somewhat normal life I’ve been.

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3 comments

  1. Connie…you are in my prayers…did you ever find a copy of ‘Waiting on God’…Andrew Murray…I KNOW that your soul would be soooo blessed…

    Amy

    comment by amy lilley — May 25, 2008 @ 8:37 pm
  2. Hey Connie,
    I’m so sorry that you are going through this. It is horrible. I went through that for about a month and a half, didn’t know why. And I’m raising my 2 year old granddaughter, so I had to have my mother come over and watch her when i passed out. Oh, I so understand and empathize with you. I will pray that these symptoms will run their course quickly and you can get back to feeling like you again. A very good friend told me to sleep without guilt, and I know that’s hard to do, but know that you can’t help it and it’s not your fault.
    Blessings

    comment by Michelle — May 26, 2008 @ 7:13 pm
  3. The body seems to have a mind of its own and that can be very frustrating. One thing to try is to set an intention with your sleep, like “this will bring me closer to health” or ” if I sleep now I’ll build the resources I need to share more deeply the day-to-day lives of my family.

    Guilt has a way of creeping up on us and not being kind. These are the gremlins that we, those facing life-altering health issues, have to confront frequently. Give the gremlins a voice, but don’t give them a vote in how you want to live your life.

    I’m holding a safe and healing space for you!

    comment by Greg Katz — May 29, 2008 @ 10:08 pm

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