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June is Myasthenia Gravis Awareness Month

Posted by Connie on Sunday, June 1st, 2008 at 10:20 pm and is filed under Advocacy, Autoimmune Disease, Chronic Illness.
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June is Myasthenia Gravis Awareness month. This is very important month for me as I have had this rare neuromuscular disease for a little over five years now.

Myasthenia Gravis or MG means “grave weakness”. It is an automimmune disease that affects the voluntary muscles of the body. The most common symptom of MG is ptosis which is a drooping eyelid or eyelids. That is how MG started with me. It can also cause double vision and other visual problems. For many people this is the extent of what they will have as MG symptoms. This is occular MG.

For others like me, other parts of the body are affected. This is then called generalized Myasthenia Gravis. Facial, neck, arm, trunk and the muscles that control chewing, swallowing and even breathing can be affected. I have had all of these symptoms but the most problematic only occur rarely. I also have general muscle weakness, fatigue and poor stamina.

I am doing what I can to promote this rare disease because it is believed that there are people that have it but are not properly diagnosed. Because there are treatments that work, it is so important to see your doctor if you have any symptoms listed here.

I’m promoting this on my blogs, website, Squidoo lenses, on Facebook and by writing letters and shipping boxes of information from the Myasthenia Gravis Foundation of America. Please help spread the word about MG.

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2 comments

  1. Hello i am rodolfo a filipino staying here in Canada for almost two years. I read your article and attracted me so much because i had a son and elder daughter who had these kind of disease. They have passed away , i did not know that there is these Month of Mysthenia Gravis . I wish i could do something of help not much i am a caregiver.

    comment by rodaflip — June 3, 2008 @ 9:28 am
  2. I wished I would have known that June was MG month. I commented a little while ago and now I am just reading your blog. My mom is newly diagnosed, not quiet a year yet. She is to the point where she is unable to swallow or speak at all. She is being fed through a tube and just mumbles when she speaks. She had the IV done, but it wasn’t something that really helped her out. She is elderly and almost bed ridden. This is one of those things when you think Why? I wish you the best of luck with MG.

    Joanna’s last blog post..500th Post Blog Party ~ Contest Number 12 ~ M Jennings Designs

    comment by Joanna — July 30, 2008 @ 10:49 pm

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