Who Me, Stubborn?

Posted by Connie on Sunday, June 29th, 2008 at 8:27 pm and is filed under Autoimmune Disease, Chronic Illness, DisABILITY Advocate.
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Hubby is walking away from me with a look of disgust on his face. He just finished telling me that I need to get to bed early. He knows that I’m worried about my appointment tomorrow with the Kidney specialist. He knows I didn’t sleep last night at all and so I slept in today plus took a nap. He knows I’ve been sitting at the computer too long this evening.

I know he’s right on every count, but do I listen? I’m here posting on my blog instead of getting ready for bed. I’m as stubborn as an ox, a ram, a donkey.

But being stubborn when you have chronic autoimmune diseases and complications is a good thing. It keeps me from giving up when times are tough. It keeps me searching for good doctors when I know the doctor I have isn’t helping me. It keeps me researching my symptoms and being assertive with my medical care.

Those of us who are in the chronic illness group need to be stubborn at times.

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  1. I haven’t really blogged much about it on my blog, but I have an autoimmune disease. It’s called Celiac Disease. Not sure if you have heard about it. One of these days I will start making posts about it.

    Good luck with your appt tomorrow , errr I just realized the date of this post, so maybe you had your appt today :)
    Hope it went well…!!!!

    tazdog’s last blog post..New Office

    comment by tazdog — June 30, 2008 @ 10:23 pm
  2. I agree that being stubborn often gives us purpose when battling a health challenge. If you’re doctors aren’t helping then find easier ways of getting the help you need. Depending on where you live and the illness find research centers/hospitals and see who specializes in your illness.

    I’ve found that even traveling for a consult and a treatment regimen and then having a local doctor administer the treatment can be helpful. It’s something many cancer patients do in order to receive what they feel is the gold standard of care. It would be an equally good practice for those of us with auto-immune diseases.

    The other thing might be to interview the doctors. My doctor is very forthcoming with treatment strategies and is always reviewing the current research. It instills confidence in me and that creates a great health team.

    comment by Greg Katz — July 2, 2008 @ 6:37 pm

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