Comments on: Gitelman’s Syndrome http://mychroniclife.com/2008/08/01/gitelmans-syndrome/ A Health Blog By Someone Who Knows Mon, 21 May 2012 15:23:29 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Joyce http://mychroniclife.com/2008/08/01/gitelmans-syndrome/comment-page-1/#comment-32365 Joyce Sat, 17 Apr 2010 02:30:34 +0000 http://mychroniclife.com/2008/08/01/gitelmans-syndrome/#comment-32365 Hello I also have Gitelmans Syndrome. I have so many symptoms but weakness is the worse. My body aches and shakes. I am nausiated constantly, I urinate and have diarrhea constantly. I recently was in the hospital twice within two weeks. I can no longer work. Has anyone been able to get social security with this or any help at all? Hello I also have Gitelmans Syndrome. I have so many symptoms but weakness is the worse. My body aches and shakes. I am nausiated constantly, I urinate and have diarrhea constantly. I recently was in the hospital twice within two weeks. I can no longer work. Has anyone been able to get social security with this or any help at all?

]]> By: Sara Perri http://mychroniclife.com/2008/08/01/gitelmans-syndrome/comment-page-1/#comment-26592 Sara Perri Mon, 01 Mar 2010 17:46:56 +0000 http://mychroniclife.com/2008/08/01/gitelmans-syndrome/#comment-26592 Lori, My legs hurt all the time too, so I understand what you mean. Running and stretching seems to help. Yaz has really helped me maintain a good Potassium level. It helps more than just taking K supplements. You should talk to your doctor about it. -Sara Lori,

My legs hurt all the time too, so I understand what you mean. Running and stretching seems to help. Yaz has really helped me maintain a good Potassium level. It helps more than just taking K supplements. You should talk to your doctor about it.

-Sara

]]> By: lori http://mychroniclife.com/2008/08/01/gitelmans-syndrome/comment-page-1/#comment-25862 lori Wed, 24 Feb 2010 14:57:52 +0000 http://mychroniclife.com/2008/08/01/gitelmans-syndrome/#comment-25862 my name is lori i was diagnosed at 6year old with gitelman's sysdrome and polystic kidney's disease my father had it.he passed away 4years my three sister have it too.i'am the only one that is very sick with all the time with the potassium it run 2.1my legs allways hurt and arms. my name is lori i was diagnosed at 6year old with gitelman’s sysdrome and polystic kidney’s disease my father had it.he passed away 4years my three sister have it too.i’am the only one that is very sick with all the time with the potassium it run 2.1my legs allways hurt and arms.

]]> By: Sara Perri http://mychroniclife.com/2008/08/01/gitelmans-syndrome/comment-page-1/#comment-22795 Sara Perri Tue, 19 Jan 2010 17:05:06 +0000 http://mychroniclife.com/2008/08/01/gitelmans-syndrome/#comment-22795 Hi Connie & Kay, I'm 27 years old and was diagnosed with Gitelman's when I was 11 years old. My magnesium runs between 0.4-0.9. My K levels used to run about 2.9 until I started taking Yaz. Now my K is up to 3.8-4.0! I highly suggest you talk to your nephrologist about taking Yaz. It has significantly increased my potassium. My magnesium still runs very low but at least my potassium level is much better. I stopped taking Yaz for a short time and got tetany in my face really bad and my fatigue level greatly increased. Kay - 28 pills a day is crazy, what meds is your daughter taking? Also, I've discovered Effer-K which is a tablet you drop in water so you can drink the K instead of swallowing those huge horse pills. Please feel free to contact me! Sara sperri@fuse.net Hi Connie & Kay,

I’m 27 years old and was diagnosed with Gitelman’s when I was 11 years old. My magnesium runs between 0.4-0.9. My K levels used to run about 2.9 until I started taking Yaz. Now my K is up to 3.8-4.0! I highly suggest you talk to your nephrologist about taking Yaz. It has significantly increased my potassium. My magnesium still runs very low but at least my potassium level is much better. I stopped taking Yaz for a short time and got tetany in my face really bad and my fatigue level greatly increased.

Kay – 28 pills a day is crazy, what meds is your daughter taking? Also, I’ve discovered Effer-K which is a tablet you drop in water so you can drink the K instead of swallowing those huge horse pills.

Please feel free to contact me!

Sara
sperri@fuse.net

]]> By: Kay Wilson http://mychroniclife.com/2008/08/01/gitelmans-syndrome/comment-page-1/#comment-16636 Kay Wilson Wed, 23 Sep 2009 17:14:07 +0000 http://mychroniclife.com/2008/08/01/gitelmans-syndrome/#comment-16636 I happened on to your site. My daughter who is 17, was diagnosed in late March '09 with Gitelman's Syndrome. Recently they have determined she also has a mild case of Bartter's Syndrome. She is passing out on a regular basis(once a week) and currently takes 28 pills a day. How long did it take to get your pot. up? She stays in the 3.2 area. Hers can get down to 2.6 which is scary, but we have got her pot up to 3.4 before. wohoo! Her magnesium is low also, 1.4 right now which is her highest she has had in some time. Any ideas, encouragement would be welcome! Thanks and good luck to you. .-= Kay Wilson´s last blog ..<a href="http://news.aol.com/article/dust-storm-gives-sydney-australia-red/682532">Huge Red Glow Takes Over City</a> =-. I happened on to your site. My daughter who is 17, was diagnosed in late March ’09 with Gitelman’s Syndrome. Recently they have determined she also has a mild case of Bartter’s Syndrome. She is passing out on a regular basis(once a week) and currently takes 28 pills a day. How long did it take to get your pot. up? She stays in the 3.2 area. Hers can get down to 2.6 which is scary, but we have got her pot up to 3.4 before. wohoo! Her magnesium is low also, 1.4 right now which is her highest she has had in some time. Any ideas, encouragement would be welcome! Thanks and good luck to you.
.-= Kay Wilson´s last blog ..Huge Red Glow Takes Over City =-.

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