Comments on: Bernie Mac and Sarcoidosis

By: Katherine

Katherine — Sun, 20 May 2012 02:06:15 +0000

You know I thank God for being my Protector, my Father, my Doctor and my Healer. Cause I’m determine not to let this disease affect my ability to live a life to it’s fullness.

By: Katherine

Katherine — Sun, 20 May 2012 01:48:44 +0000

I was diagnose with sarcoidosis in 1997, so it been 15 years for me. my symptons started off with me sleeping alots, I mean all day, around my eyes was blacken like someone pouch me in the eyes, skin rash, difficult breathing, swollen and pains in my joints, sinus infections alots, pains are so hurtful when you walk are kneel down and my voice would raise into a high pitch note like it’s running away from me when i’m talking. They placed me on oxygen, prednisone, celebrex, CPAP cause during the night while I sleep I will stop breathing, had to do my breathing treatment and etc; I always check for updates on this disease. When i was about 2months old my parents took me to the doctor and he told them if they was a minute late I would have been die. He diagonsed me with bronchitis and they couldn’t give me nothing but crackers and sprite soda with the pneumonia. They was told I would grow out of having bronchitis all the time, here i’m 54 years old now and still dealng with respiratory . From my bronchoscopy in 1997 the finding was pulmonary alveolar proteinosis, sarcoid,lupus, or an infectious process

By: kesha

kesha — Mon, 28 Jun 2010 17:11:51 +0000

my name is kesha and i just found out i had this illness about 1 month ago, i must admit i am a little scared but im trusting that jesus will fix this for us all just trust and believe what the m.d.’s cant find he will fix trust in him

By: Marlene

Marlene — Tue, 30 Mar 2010 10:43:22 +0000

Hi My name is Marlene, i was diagnosed with sarcoidosis less than a year ago, i was stricken with a skin rash, high fever, joint pain adn difficult breathing. never the less i spent 2 weeks in the hospital being pick over uni several doctors finally diagnosed my problem. i am still in the research phase and i would like others who has been diagnosed to please share their stories or even send me an e-mail.

Thanking you in advance.

By: elizabeth higgins

elizabeth higgins — Thu, 28 Jan 2010 20:41:26 +0000

thank you for all the information my mother and my sister both have sarq. my mom also has heart problems. my sisters now has ovitis. so any information that spreads awareness is wonderful. its really hard to watch the ones we love hurt so much and always wonder if my children or my sisters kids will be next.

By: Robert McClellan

Robert McClellan — Thu, 06 Aug 2009 22:34:40 +0000

You all are not alone. My advice is to find the nearest support group and participate. I belong to one in Kansas City and we are trying to increase awareness in our area. It starts with one small step and a lot of persistence after that. This is one disease that survivors usually know more than their doctors. Talking with other survivors is the best way to gain more information and an better understanding of Sarcoidosis.

By: Sarkie Patient

Sarkie Patient — Sun, 15 Mar 2009 17:13:03 +0000

Sarcoidosis can, in fact, cause major complications, and even have a hand in other diseases, disorders, illnesses, etc., that can lead to an untimely death. Many people that have this disease do have many issues with their lungs, including pnemonia. Sarcoidosis does and can effect the entire body!

I also have Sarcoidosis and I’d like to see more research done!!!

It’s sad how many people are taken away, way too early from this disease and those that are still fighting suffer daily.

There’s an online petition for USA now out, please take a moment to sign it, so we can find a cure today!

http://www.thepetitionsite.com/1/sarcoidosis-it-hurts

Thanks for listening and posting about this disease!

By: Desiree

Desiree — Mon, 02 Feb 2009 18:12:19 +0000

I have had Sarcoidosis for 21 yrs. I almost died the first time I had a bout with it. I just survived my second bout recently and feel soooo much better. I refuse to take Prednisone, I did that the first time and blew up like a balloon and was so angry all the time and never slept. I feel better and am trying to get back to the workout level I was at. It is a battle with the joint pain everyday but I will not give up. I believe in the power of positive believing from God. I am able to get through a day now without pain killers and joint pain. It takes a few hours to get moving in the a.m. but my will is very strong.

By: Nadeina Brill

Nadeina Brill — Mon, 20 Oct 2008 06:27:43 +0000

I too have Sarcoidosis and I can’t believe any Doctor would say it didn’t play a major role in Bernie Mac’s death. This is a terrible disease and it is time that Doctors started listening to their patients. We all need to raise HELL about the fact that so many people have it and yet they still refer to it as a rare disease. The only thing rare about it is a Doctor that knows something about it.

By: DANA PRYOR

DANA PRYOR — Sun, 21 Sep 2008 01:37:10 +0000

I have sacidosis well and i must say that this is killing me slowly. i also have asthma and sometimes i wish i could die. the doctors don’t know what to do and the predisone makes me gain alot of weight. if it was not for the blood of jesus i don’t beleive that i would have made it this far. so far all the people that are going through my prayers are with u and please be of good chher god will pull us all out