Comments on: Bernie Mac and Sarcoidosis

By: kesha

kesha — Mon, 28 Jun 2010 17:11:51 +0000

my name is kesha and i just found out i had this illness about 1 month ago, i must admit i am a little scared but im trusting that jesus will fix this for us all just trust and believe what the m.d.’s cant find he will fix trust in him

By: Marlene

Marlene — Tue, 30 Mar 2010 10:43:22 +0000

Hi My name is Marlene, i was diagnosed with sarcoidosis less than a year ago, i was stricken with a skin rash, high fever, joint pain adn difficult breathing. never the less i spent 2 weeks in the hospital being pick over uni several doctors finally diagnosed my problem. i am still in the research phase and i would like others who has been diagnosed to please share their stories or even send me an e-mail.

Thanking you in advance.

By: elizabeth higgins

elizabeth higgins — Thu, 28 Jan 2010 20:41:26 +0000

thank you for all the information my mother and my sister both have sarq. my mom also has heart problems. my sisters now has ovitis. so any information that spreads awareness is wonderful. its really hard to watch the ones we love hurt so much and always wonder if my children or my sisters kids will be next.

By: Robert McClellan

Robert McClellan — Thu, 06 Aug 2009 22:34:40 +0000

You all are not alone. My advice is to find the nearest support group and participate. I belong to one in Kansas City and we are trying to increase awareness in our area. It starts with one small step and a lot of persistence after that. This is one disease that survivors usually know more than their doctors. Talking with other survivors is the best way to gain more information and an better understanding of Sarcoidosis.

By: Sarkie Patient

Sarkie Patient — Sun, 15 Mar 2009 17:13:03 +0000

Sarcoidosis can, in fact, cause major complications, and even have a hand in other diseases, disorders, illnesses, etc., that can lead to an untimely death. Many people that have this disease do have many issues with their lungs, including pnemonia. Sarcoidosis does and can effect the entire body!

I also have Sarcoidosis and I’d like to see more research done!!!

It’s sad how many people are taken away, way too early from this disease and those that are still fighting suffer daily.

There’s an online petition for USA now out, please take a moment to sign it, so we can find a cure today!

http://www.thepetitionsite.com/1/sarcoidosis-it-hurts

Thanks for listening and posting about this disease!

By: Desiree

Desiree — Mon, 02 Feb 2009 18:12:19 +0000

I have had Sarcoidosis for 21 yrs. I almost died the first time I had a bout with it. I just survived my second bout recently and feel soooo much better. I refuse to take Prednisone, I did that the first time and blew up like a balloon and was so angry all the time and never slept. I feel better and am trying to get back to the workout level I was at. It is a battle with the joint pain everyday but I will not give up. I believe in the power of positive believing from God. I am able to get through a day now without pain killers and joint pain. It takes a few hours to get moving in the a.m. but my will is very strong.

By: Nadeina Brill

Nadeina Brill — Mon, 20 Oct 2008 06:27:43 +0000

I too have Sarcoidosis and I can’t believe any Doctor would say it didn’t play a major role in Bernie Mac’s death. This is a terrible disease and it is time that Doctors started listening to their patients. We all need to raise HELL about the fact that so many people have it and yet they still refer to it as a rare disease. The only thing rare about it is a Doctor that knows something about it.

By: DANA PRYOR

DANA PRYOR — Sun, 21 Sep 2008 01:37:10 +0000

I have sacidosis well and i must say that this is killing me slowly. i also have asthma and sometimes i wish i could die. the doctors don’t know what to do and the predisone makes me gain alot of weight. if it was not for the blood of jesus i don’t beleive that i would have made it this far. so far all the people that are going through my prayers are with u and please be of good chher god will pull us all out

By: Susan

Susan — Wed, 17 Sep 2008 20:11:53 +0000

I too have sarcoidosis for over 6 years. I have been told I have pulmonary sarcoidosis, also joint, and eyes. It has enlarged my heart, gall bladder (which I had removed) spleen. I have rashes too. I have been really bad with it and been in and out of the hospital over 23 times in one year. I have been on oxygen 24 hours and now off of it. For how long no one knows. My life is somewhat restricted in everyday function with something no one knows where it come from. I have been asked if I have lived near pine trees in South Carolinia, near sand mines, worked around old buildings. I know how predisone effects the body first hand being on large doses for years. I think the predisone side effects are almost as bad as the disease. I know Bernie died of pnuemonia due to Sarcoidosis because I came close myself. I will miss him and wish he would of came out with having Sarcoidosis earlier and been a spokesperson for it.

By: Jaz

Jaz — Mon, 01 Sep 2008 18:29:17 +0000

I suffer from Sarcoidosis as well & the intensity of my symptoms vary from time! I agree with one of the other “bloggers” that it’s far fetch to say that the great Bernie Mac’s pnuemonia had nothing to do with Sarcoidosis . . . once you have a condition that compromises your immune system any sickness that occurs is that much harder to battle!! And since he had a respitory infection, one would better believe Sarcoid played a part.

I was diagnosed with Sarcoidosis two years ago and it was because of respitory problems, now my flare ups are more joint, skin and EXTREME fatique related. I had NEVER heard of this illness either until I was diagnosed and now I’m meeting soooo many people with it! Symptoms vary so much between suffers that it’s hard for those who don’t have it to understand what we go through . . . I think it’s about time we as suffers make more noise about this disease!

I URGE each person dealing with this illness to continue to research the updates on Sarcoidosis and continue to share your experience and by all means EDUCATE your primary doctor’s because MOST PCP’s don’t have really have a clue about the effects of Sarcoid because it’s not their area of expertise and we have to bring the information to them!

I wish everyone peace & balance & better health!