Laurie Edwards has written Life Disrupted, Getting Real About Chronic Illness in Your Twenties and Thirties. There is really no age limit for people who read this book. If you have any type of chronic illness this book is for you.
As I read Life Disrupted I found myself nodding my head in agreement. Laurie “gets it” and has challenged me to work harder as an advocate for people with chronic illnesses.
Laurie lives with PCD (primary ciliary dyskinesia), a rare illness, which was wrongly diagnosed as a child. She understands many of us living in limbo land with either a wrong diagnosis or no diagnosis.
She writes about life with a chronic illness, from being in the medical forum as a patient, to being a member of society to being a family member. Along the way you’ll learn how to stand up for yourself, how to be seen as person not a sick person, how to make decisions about your medical care and how to live a fulfilling life.
This is a personal and moving book. Laurie shares her life, good and bad. This is an informative book. Read about how to cope in the emergency room and in hospitals, what and who to tell about your health issues and, what you can teach the medical community about people with chronic illnesses. You’ll laugh too, because after all that’s part of life, and Laurie Edwards shows us that you can have a full life even with a difficult diagnosis.
I have added this book to my small list of “must have” books as I have multiple chronic illnesses. I know I’ll be re-reading it and looking over certain items again when I need some reassurance.