Living Not Surviving With Pain

Posted by Connie on Saturday, October 4th, 2008 at 10:00 pm and is filed under Chronic Illness, Loving Life.
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Chronic pain is often a big part of chronic illnesses. People with Fibromyalgia, arthritis, RSD. neuropathy, migraines, and many other diseases have pain as a symptom. It is so difficult to put into words what it is like to feel pain every day of your life. To hurt all or most of the time, and still function is so difficult that some people cannot get through without narcotics.

If you feel the effects of the narcotic drugs, like fatigue, sleepiness, dizziness, confusion then you are most often unable to do things like drive, go shopping, take part in social activities, etc. You are not hurting but your life is severely changed for the worse.

I will not ever put down people who need pain medication. I have been at that point in my life and I can empathize. I do want to say though that I no longer use pain meds. After realizing that I was missing so much of my life being in a daze I talked to my doctor and said I needed to find a different way to cope.

I now take medications that ease my pain but are not narcotics. I have learned to stretch my muscles to ease tension and pain. I avoid things, as much as possible that cause me to hurt or I work around them. My mental attitude toward pain has changed dramatically too. Instead of focusing on it, I now keep my mind occupied on other things.

Please understand that I still hurt and it can get very bad still. There are times that I do call my doctor for a prescription for pain meds. I’m not saying that anyone should suffer. I do suggest that if you along with your doctor agree that you can try to find a new way to cope, then go for it!

I look at it this way – My life is full of memories on tape drives. I don’t want to miss out on them because I”m too zonked to take part in them or remember them. I want to be a part of everything that life gives me. I hurt a lot. It has become a part of my life. If it gets worse I deal with it. If it’s my “normal” stuff I just keep on going. I want to live my life to the fullest!

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  1. Life in pain is a terrible way to live. People who have never had to deal with chronic debilitating pain do not understand what it’s like to live like this.

    And I agree, being on narcotic meds all the time is no way to live either.
    Once i’m healed from this most recent surgery, I’m going to ask about the pain implant machine.
    It’s attached to the pain receptors in your spinal column, and runs around to the stomach.
    It is something that has to be surgically installed, but I hear it works really well once the patient and the doctor find a setting on the device that works for the patient.

    I’ll give it a try because I don’t want to spend my life on narcotics, but I know that I cannot live with, cope with, the amount of pain that I deal with on a daily basis.
    There are days that it has me curled up in bed and unable to move at all.

    My wish is to be pain and drug free someday.

    Kat’s last blog post..Loss of mobility I didn’t expect.

    comment by Kat — October 4, 2008 @ 10:15 pm
  2. Connie- Thank you for responding on my blog. I would love assistance with Myasthenia info. my email is
    I will look thru your website and find the info you have up on MG

    Josie’s last blog post..Lyda Phillips- a guest appearance by one of my favorite people!

    comment by Josie — October 6, 2008 @ 1:20 pm
  3. I have fibromyalgia and chronic fatigue. I’m very lucky that I have a low tolerance for pain meds, so a little bit goes a long way. I can make due most of the time with extra strength tylenol, which is good because I can’t take aspirin or ibuprofen due to stomach problems. I prefer not to take narcotic pain relief simply because it has such a negative impact on my digestive system. I’ve used it a couple of times when things were really bad, and try to avoid it if I can.

    I know so many people with FMS who need to take narcotics. They are absolutely necessary for them to function. It’s sad that they have to jump through so many hoops to get necessary pain control.

    comment by Jodith — October 6, 2008 @ 8:03 pm
  4. [...] be using my pain relief techniques that I wrote about before because I’m really feeling badly now. I know it will pass soon [...]

    pingback by No Humira For Me | My Chronic Life — October 24, 2008 @ 10:23 am

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