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	<title>Comments on: Living Not Surviving With Pain</title>
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	<link>http://mychroniclife.com/2008/10/04/living-not-surviving-with-pain/</link>
	<description>A Health Blog By Someone Who Knows</description>
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		<title>By: No Humira For Me &#124; My Chronic Life</title>
		<link>http://mychroniclife.com/2008/10/04/living-not-surviving-with-pain/comment-page-1/#comment-5845</link>
		<dc:creator>No Humira For Me &#124; My Chronic Life</dc:creator>
		<pubDate>Fri, 24 Oct 2008 14:23:38 +0000</pubDate>
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		<description>[...] be using my pain relief techniques that I wrote about before because I&#8217;m really feeling badly now. I know it will pass soon [...]</description>
		<content:encoded><![CDATA[<p>[...] be using my pain relief techniques that I wrote about before because I&#8217;m really feeling badly now. I know it will pass soon [...]</p>
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		<title>By: Jodith</title>
		<link>http://mychroniclife.com/2008/10/04/living-not-surviving-with-pain/comment-page-1/#comment-5167</link>
		<dc:creator>Jodith</dc:creator>
		<pubDate>Tue, 07 Oct 2008 00:03:58 +0000</pubDate>
		<guid isPermaLink="false">http://mychroniclife.com/2008/10/04/living-not-surviving-with-pain/#comment-5167</guid>
		<description>I have fibromyalgia and chronic fatigue.  I&#039;m very lucky that I have a low tolerance for pain meds, so a little bit goes a long way.  I can make due most of the time with extra strength tylenol, which is good because I can&#039;t take aspirin or ibuprofen due to stomach problems.  I prefer not to take narcotic pain relief simply because it has such a negative impact on my digestive system.  I&#039;ve used it a couple of times when things were really bad, and try to avoid it if I can.

I know so many people with FMS who need to take narcotics.  They are absolutely necessary for them to function.  It&#039;s sad that they have to jump through so many hoops to get necessary pain control.</description>
		<content:encoded><![CDATA[<p>I have fibromyalgia and chronic fatigue.  I&#8217;m very lucky that I have a low tolerance for pain meds, so a little bit goes a long way.  I can make due most of the time with extra strength tylenol, which is good because I can&#8217;t take aspirin or ibuprofen due to stomach problems.  I prefer not to take narcotic pain relief simply because it has such a negative impact on my digestive system.  I&#8217;ve used it a couple of times when things were really bad, and try to avoid it if I can.</p>
<p>I know so many people with FMS who need to take narcotics.  They are absolutely necessary for them to function.  It&#8217;s sad that they have to jump through so many hoops to get necessary pain control.</p>
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		<title>By: Josie</title>
		<link>http://mychroniclife.com/2008/10/04/living-not-surviving-with-pain/comment-page-1/#comment-5150</link>
		<dc:creator>Josie</dc:creator>
		<pubDate>Mon, 06 Oct 2008 17:20:10 +0000</pubDate>
		<guid isPermaLink="false">http://mychroniclife.com/2008/10/04/living-not-surviving-with-pain/#comment-5150</guid>
		<description>Connie- Thank you for responding on my blog. I would love assistance with Myasthenia info. my email is artyaimes@gmail.com
I will look thru your website and find the info you have up on MG
Josie

&lt;em&gt;Josie&#039;s last blog post..&lt;a href=&#039;http://fearlesscreativity.blogspot.com/2008/10/lyda-phillips-guest-appearanceby-one-of.html&#039;&gt;Lyda Phillips- a guest appearance by one of my favorite people!&lt;/a&gt;&lt;/em&gt;</description>
		<content:encoded><![CDATA[<p>Connie- Thank you for responding on my blog. I would love assistance with Myasthenia info. my email is <a href="mailto:artyaimes@gmail.com">artyaimes@gmail.com</a><br />
I will look thru your website and find the info you have up on MG<br />
Josie</p>
<p><em>Josie&#8217;s last blog post..<a href='http://fearlesscreativity.blogspot.com/2008/10/lyda-phillips-guest-appearanceby-one-of.html'>Lyda Phillips- a guest appearance by one of my favorite people!</a></em></p>
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		<title>By: Kat</title>
		<link>http://mychroniclife.com/2008/10/04/living-not-surviving-with-pain/comment-page-1/#comment-5060</link>
		<dc:creator>Kat</dc:creator>
		<pubDate>Sun, 05 Oct 2008 02:15:12 +0000</pubDate>
		<guid isPermaLink="false">http://mychroniclife.com/2008/10/04/living-not-surviving-with-pain/#comment-5060</guid>
		<description>Life in pain is a terrible way to live. People who have never had to deal with chronic debilitating pain do not understand what it&#039;s like to live like this.

And I agree, being on narcotic meds all the time is no way to live either.
Once i&#039;m healed from this most recent surgery, I&#039;m going to ask about the pain implant machine.
It&#039;s attached to the pain receptors in your spinal column, and runs around to the stomach. 
It is something that has to be surgically installed, but I hear it works really well once the patient and the doctor find a setting on the device that works for the patient.

I&#039;ll give it a try because I don&#039;t want to spend my life on narcotics, but I know that I cannot live with, cope with, the amount of pain that I deal with on a daily basis.
There are days that it has me curled up in bed and unable to move at all. 

My wish is to be pain and drug free someday.

&lt;em&gt;Kat&#039;s last blog post..&lt;a href=&#039;http://www.katjcooper.com/2008/10/loss-of-mobility-i-didnt-expec.html&#039;&gt;Loss of mobility I didn&#039;t expect.&lt;/a&gt;&lt;/em&gt;</description>
		<content:encoded><![CDATA[<p>Life in pain is a terrible way to live. People who have never had to deal with chronic debilitating pain do not understand what it&#8217;s like to live like this.</p>
<p>And I agree, being on narcotic meds all the time is no way to live either.<br />
Once i&#8217;m healed from this most recent surgery, I&#8217;m going to ask about the pain implant machine.<br />
It&#8217;s attached to the pain receptors in your spinal column, and runs around to the stomach.<br />
It is something that has to be surgically installed, but I hear it works really well once the patient and the doctor find a setting on the device that works for the patient.</p>
<p>I&#8217;ll give it a try because I don&#8217;t want to spend my life on narcotics, but I know that I cannot live with, cope with, the amount of pain that I deal with on a daily basis.<br />
There are days that it has me curled up in bed and unable to move at all. </p>
<p>My wish is to be pain and drug free someday.</p>
<p><em>Kat&#8217;s last blog post..<a href='http://www.katjcooper.com/2008/10/loss-of-mobility-i-didnt-expec.html'>Loss of mobility I didn&#8217;t expect.</a></em></p>
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