Disappointments With Chronic Illness
I try my best to be positive, but there are some days when I can’t help but be disappointed with living with chronic illnesses. Today is one of those days. We arrived for our first day at Disney World. I knew that it was going to be hot of course and planned accordingly.
Instead of visiting the parks during the heat of the day because it affects the Myasthenia Gravis, I planned on keeping busy indoors and going to the parks after the sun goes down. Today we did just that, well almost. I stayed in the resort during the day, looking around and of course checking out the shopping. We ate lunch here too. I got to take a nap in the late afternoon and we planned on going to Epcot about 7 PM.
Unfortunately the minute we got outside the heat hit me and I felt terribly weak. So weak in fact that I couldn’t even use my scooter. Not good for me or for my husband and daughter. I have been going through some serious issues with the MG lately so I guess this was to be expected.
We were able to take our van to go out to eat instead. Torrow is another day and I’m using my positive attitude to think that I will feel better. I’m going to get a good night’s sleep and be sure to take my meds on time, eat right and not stress.
I’ll keep you posted on how things go. The one great thing about Disney is that even if I don’t get to the Parks, there’s so much that I can do indoors to have fun.
It makes me smile that you’re not letting dissapointment keep you down.
Praying for you. Come back soon!
I know exactly how you feel. Sometimes just crying releases that emotion and then we can focus on the positive. Hang in there- you’re not alone and I admire your strength!!
Blessings,
Eren Mckay
Eren Mckay’s last blog post..And I Await (poem about hope in the midst of trials)
I’m so sorry you are having some trouble enjoying your vacation.! I really hope it cools down a bit so you can enjoy the outside bits more!
In the meantime, it’s inspiring to see that you manage to still have a positive attitude and try to enjoy it despite everything!
Novel Patient’s last blog post..In Search of a Novel Doctor
I’m so sorry that your energy is low at a time when you need it to fully enjoy your needed vacation. Stay positive and get plenty of rest sweetie. I admire you more than you know.
Connie I so know that feeling. I often feel disappointed because I know my kids miss out due to my pain…..great attitude you have. Hope the rest of the trip turned out good
During vacation we all are always so excited and when such things happen, feels disappointed.
Connie, I read your health blog and found your courage and optimism inspiring. I didn’t realize you were dealling with this.
I would like to know what is the difference between a chronic illness and a terminally illness because my wife has a chronic disease called diabetes.