Comments on: Primary Medical Care For Chronically Ill http://mychroniclife.com/2009/06/27/primary-medical-care-for-chronically-ill/ A Health Blog By Someone Who Knows Wed, 17 Mar 2010 21:04:25 +0000 http://wordpress.org/?v=2.7.1 hourly 1 By: Susan http://mychroniclife.com/2009/06/27/primary-medical-care-for-chronically-ill/comment-page-1/#comment-13023 Susan Tue, 30 Jun 2009 23:27:46 +0000 http://mychroniclife.com/?p=642#comment-13023 My daughter (almost 5) has juvenile arthritis and other chronic health issues. We are fortunate that her visits to the pediatric rheumatologist are free until she turns 18 (though it feels like we are just numbers there sometimes), but what is frustrating is that our health insurance doesn't consider her medications to be preventive, so they won't cover them, not even partially, until we hit our deductible. Unfortunately the deductible is quite high, but the meds run $1500/month, so we've since hit the deductible and now pay 20-50% depending on the medication. Without the meds, she'll be permanently disabled and wheelchair bound, so I don't know why they are not considered preventive. I do find it is trying to keep all the doctors informed of what's going on and not all of them are good about sharing information among each other. I'm sorry to hear of your difficulties with doctors. I hope that changes or someone figures out what's causing all these autoimmune diseases. My daughter (almost 5) has juvenile arthritis and other chronic health issues. We are fortunate that her visits to the pediatric rheumatologist are free until she turns 18 (though it feels like we are just numbers there sometimes), but what is frustrating is that our health insurance doesn’t consider her medications to be preventive, so they won’t cover them, not even partially, until we hit our deductible. Unfortunately the deductible is quite high, but the meds run $1500/month, so we’ve since hit the deductible and now pay 20-50% depending on the medication. Without the meds, she’ll be permanently disabled and wheelchair bound, so I don’t know why they are not considered preventive.

I do find it is trying to keep all the doctors informed of what’s going on and not all of them are good about sharing information among each other.

I’m sorry to hear of your difficulties with doctors. I hope that changes or someone figures out what’s causing all these autoimmune diseases.

]]> By: Holly http://mychroniclife.com/2009/06/27/primary-medical-care-for-chronically-ill/comment-page-1/#comment-13007 Holly Sun, 28 Jun 2009 14:55:34 +0000 http://mychroniclife.com/?p=642#comment-13007 I have not had to experience being turned down yet myself. Michigan I believe has laws against that. I do know a few people it has happened to though and it's so difficult to deal with. I really think there should be a law against doctors refusing to care for patients. .-= Holly´s last blog ..<a href="http://abcfinedesignblog.com/2009/06/27/tell-your-story-with-art/">Tell Your Story With Art</a> =-. I have not had to experience being turned down yet myself. Michigan I believe has laws against that. I do know a few people it has happened to though and it’s so difficult to deal with.

I really think there should be a law against doctors refusing to care for patients.
Holly´s last blog ..Tell Your Story With Art My ComLuv Profile

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