I thought I’d update you on what is happening with the Myasthenia Gravis since I saw my neurologist from the MDA last week. I am still amazed that with all of the patients he sees that he is able to remember my symptoms, especially ones that are hard to distinguish.

He noticed right away that both of my eyelids were drooping. After speaking to me about my symptoms for a little while and then examining me, we talked about how to handle my worsening strength and stamina. During my last visit he suggested that we increase the Cellcept, which I did not agree with. But this time, it felt it was necessary. Instead of increasing my dose to 3000 mg though, we’re trying 2500 mg. My fear with this increase is that my ability to fight off infections is going to be very low because I am also on Humira.

He agreed that I do need to be more careful than normal about catching colds or anything more serious and to go with the 2500 mg. He also increased two doses of Mestinon. He feels that the MG is worse now because of the heat (I live in Florida and this summer has been pretty bad) and because of starting menopause. Hopefully I won’t need to be on the higher med dose for a long time.

I’m going to get a pneumonia vaccine and talk to my Primary Doctor about any other suggestions on how to stay healthy while being on two immunosuppressants.