Best Conversation Ever #HAWMC

Posted by Connie on Sunday, April 8th, 2012 at 9:11 pm and is filed under Chronic Illness, Family Life.
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Prompt: Best conversation I had this week. Try writing script-style (or with dialogue) today to recap an awesome conversation you had this week.

Reminder: My daughter, Sammi who is 12 years was possibly diagnosed with Long QT Syndrome. She’s a borderline case, but we will get a firm diagnosis this summer.


Conversation between myself and my husband, Shawn….

Me: I really want Sammi to spend a few weeks with her sister in Kansas this summer.

Shawn: We need to get her to the Mayo Clinic or Shands Hospital this summer to find out if she has it.

Me: She has the whole summer off. There’s plenty of time for her to go to Kansas.

Shawn: I know, but that’s the most important thing we need to do.

Me: I agree, but it shouldn’t interfere with her having fun.

No reply….

Me: Shawn, we have to let Sammi live a regular life. Sheltering her isn’t go to do anyone good.  She really needs to spend time away from us! I’m afraid that we’re only hurting her now and for her future.

We discussed how our daughter is spending more time alone at home, without a social life. Vacations are always together as a family and she’s never with a babysitter. Even if she does have Long QT Syndrome, she’s going to live on her own one day, hopefully by the time she goes to college. Preparing her needs to start now.

It’s hard not be overprotective when your child has a serious illness. Even though she doesn’t have the “real” diagnosis, she cannot take a very long list of medications, including antibiotics. A cold can keep her out of school so it doesn’t get worse. But, just like me she’s going to have to live her life to the fullest. It needs to start now.


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