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My Dream Day with Chronic Illnesses #HAWMC

Posted by Connie on Saturday, April 14th, 2012 at 8:57 pm and is filed under Uncategorized.
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Prompt: My Dream Day. Describe your ideal day. How would you spend your time? Who would you spend it with? Have you had this day? If not – how could you make it happen?

I have had a number of dream days despite multiple chronic illnesses. Here’s one:

Sitting in the hotel room while my family goes on an adventure without me because the pain is so bad. My choice is to get upset about it, or do something to change it. I think of them together and the fun they are having and instead of jealousy, I’m happy for them. A smile comes to my face. It’s easier now to imagine myself with them. My daughter’s laugh, my husband’s watchful eye, the connections they are making. Soon a few text messages come in that include photos of what they’re doing. They tell me to rest up because we’ll do something special when they get back.

The TV is turned off, the drapes closed and I find a comfortable position to rest. My deep breathing exercises help me get over the waves of pain. I find myself drifting off to sleep. It’s a fitful sleep, so I get some ice and wrap it in a towel. It numbs the pain a bit and I can sleep better.

When they return to the room, they gently wake me. And I’m showered with hugs and kisses. There’s a to go bag filled with some fresh fruit, a cup of soup and a sandwich. My husband opens up a Gatoraide and suggests I drink some mixed with my water. The food is delicious and helps me to feel more alert. As we sit and talk, I find myself laughing again.

Then the question, “Do you want to go out tonight or stay in the room?” I don’t want to ruin their night in case I need to rest again, or can’t cope with the pain. But, they understand so why worry? As they rest, I get in the shower and let the hot water hit those aching muscles. I take it slowly to reserve energy. Sitting and resting after my shower helps, instead of doing my hair and dressing right away.

Some how, I feel a lot better. And the thought of being with my family brightens me up. So I add some Naproxen in my purse, ask my husband to put on some Tiger Balm where I hurt and get on my scooter to go out for a few hours. After seeing the sites and splurging on some goodies, we have dinner. Mine is a salad, my favorite. The taste of the food, the view out of the restaurant window and the joy of coloring the kids menu with my daughter is too much to handle. I might burst from the love and gratitude that I feel.

Please understand, that I know all too well how detrimental pain from fibromyalgia, arthritis, Sjogren’s Syndrome and migraines can be. I don’t make light of it. And there have been periods of time when I could not function because of it. This is a dream day post. Although it has happened to me, it can be because of many factors, including that the pain wasn’t severe, that I recently had a trigger point or Humira injection or that I just darn lucky. I believe in using relaxation and deep breathing to help reduce pain, but I do not look down on anyone who needs more. I do too at times.

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