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It’s A Miracle Cure! #HAWMC

Posted by Connie on Friday, April 20th, 2012 at 11:16 pm and is filed under Chronic Illness, Non-Profits.
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Prompt: Miracle Cure. Write a news-style article on a miracle cure. What’s the cure? How do you get the cure? Be sure to include a disclaimer  ;)

TAMPA(AP) – The Mysathenia Gravis Foundation of America in cooperation with the Muscular Dystrophy Association and the The National Institute of Neurological Disorders and Stroke announce a cure for Myasthenia Gravis, a chronic neuromuscular disease that causes muscles to tire and weaken easily. After the Phase 4 trial of a surgical procedure known as a thymectomy — removal of the thymus – along with Humira, a drug used to treat Rheumatoid Arthritis, 90% of the 150 patients have gone into remission and remained in remission for six months.

Neurologists are working with Thoracic Surgeons to formulate plans for thymectomies as patients will require this surgery before the new prescription can start. Hospital staff will be educated about the surgery, recovery and the disease. After this cure was announced, it was learned that many in the medical community need updated information about Myasthenia Gravis.

Muscular Dystrophy clinics are in the process of stocking up on Humira, as the initial injection must be done while under a doctor’s care. Some patients have had a serious reaction to this medication. Within the trial, one person went into anaphalytic shock, one had hives.  This is not unusual with any prescription. This brings relief to those diagnosed with Myasthenia Gravis, approximately 20 out of 100000 individuals in the U.S. have been diagnosed with this disease.

Photograph of the patient showing right partia...

Photograph of the patient showing right partial ptosis. The left lid shows compensatory pseudo lid retraction because of equal innervation of the levator palpabrae superioris (Herring's law). b. Post tensilon test: Note the improvement in ptosis. (Photo credit: Wikipedia)

Disclaimer: Wouldn’t this be wonderful? Unfortunately, there  is no cure for Myasthenia Gravis. Humira is not a medication used to treat MG. If you want to learn more about MG, please take the time to read, “What is Myasthenia Gravis (MG)” from the Myasthenia Gravis Foundation of America. It is one of the best descriptions I have found.

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2 comments

  1. This is really a good news for every individuals who have Myasthenia Gravis. Patients have hope with this article. This is a great article to share.
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    comment by Zenny Pia — July 12, 2012 @ 1:24 am
  2. Connie, I like the optimistic tone of your article and I wish it was true. Over the last 4+ years I suffer from severe refractory myasthenia gravis which renders me utterly and hopelessly disabled with no “miracle cure” in site…

    You are absolutely correct in saying that Humira as an RA medication and that it is not currently prescribed for MG patients and here is a crucial point – NONE OF THE MG “TREATMENTS” CURRENTLY USED (IMURAN, CELLCEPT, RITUXAN, ETC.), EXCEPT MESTINON WAS ACTUALLY DEVELOPED SPECIFICALLY FOR MG…AND MESTINON TYPE MEDICATIONS WERE ON THE MARKET SINCE LATE 1930s…and mestinon does not treat disease itself, just slightly helps to relieve the symptoms somewhat sometimes.

    NIH annual research budget for MG is paltry $ 9 million with virtually no decent scale privately funded treatment R&D on the subject anywhere in the United States…Hence – no cure and hardly anything really “miraculous” in the pipeline.

    Unfortunately, MG reality is quite sad indeed.

    comment by Mart — January 6, 2013 @ 12:36 am

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