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Fave Things About the Autoimmune Community #A4Amonth

Posted by Connie on Wednesday, August 22nd, 2012 at 10:24 pm and is filed under Advocate, Autoimmune Disease.
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I’m taking part in the Advocating for Others Blog Carnival made possible through WEGO Health. I chose the community of people with Autoimmune Diseases and conditions to write about.

Prompt: List time! Write 5-10 of your favorite things about your community. Celebrate their uniqueness and be sure to tell us why those are your favorite things.

  1. We are unique. I didn’t mean to steal this from the prompt, but this community is made up of different types of people. We don’t seem to have one thing in common besides having an Autoimmune condition. Yet we gather in real life or online: in support groups and in communities or forums.
  2. We Support Others. Whether strangers who need someone to listen, or close friends who need a ride to the doctor, we do what we can to assist other people. We help raise money, spread awareness and provide referrals to doctors who treat us well.
  3. We are courageous. Many of the conditions we have can lead to other medical problems, but we learn to focus on the positives. We face pain, discomfort, fatigue and many other symptoms, but we don’t let it rule our lives.
  4. We are skeptical. Yes, that’s good. We don’t take things at face value, especially those snake oil treatments that cure everything from hang nails to cancer. We research everything, even medications that our trusted doctors give us. We don’t just accept a diagnosis so we can be dismissed. And that’s where the support from others can come in. They can share what works and what doesn’t, but also understand that each person is different and can react to treatments in a different way.
  5. We are respectful. It’s OK to turn down someone’s advice or to ask for no more advice. When we have bad days, we do our best to vent, but not take it out on others. We accept that we have different belief systems, different financial situations and unique medical conditions. (Some of us have allergies, more than one autoimmune disease or other diseases.)

The best thing we can do as a community is to join forces for research on why some of get autoimmune diseases and to find better treatments.

To learn more about the Advocating for Others Blog Carnival visit http://bit.ly/A4Amonth.

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