This is the fourth day of the Advocating for Others Blog Carnival by WEGO Health. I chose an optional prompt – From Inside the Fishbowl:
Prompt: People think they know what your life is life – but appearances can be deceiving. Write a paragraph about what your life looks like from the outside looking in – then write a paragraph about what it’s actually like from inside.
Some people say I’m always smiling. I like to dress up once in a while, but I’m usually in casual clothes. I talk a lot and quiet fast! I’m accused of being too busy. I write my blogs. I’m online a lot. I volunteer for various causes. I am a parent of 2 daughters, one who is married and lives on her own in another state and one who is 13 and is homeschooled (taking online classes). I am happy and positive.
I sleep a lot and when I wake up, it’s hard to move and get out of bed. I feel guilty because I can’t do the things I did before my diagnoses especially housework, driving and walking long distances. The heat makes me feel awful and worsens the symptoms of Myasthenia Gravis. My joints hurt and ache. I have migraines that put me in bed. There’s so much medicine that I have to take, that sometimes my stomach can’t handle it all. I am constantly in pain and fatigued. And I may be busy, but I want to do as much as I can now. I don’t know what the future holds.