About
In 2003 I was diagnosed with a major chronic illness that has changed my life. Now I can say it’s for the better. At first I was miserable, but not any more. I still have my bad days but I hope to help others from what I’ve learned.
My chronic illnesses are: Ulcerative Colitis, Myasthenia Gravis, Fibromyalgia, Sjogren’s Syndrome, Anemia, Mitral Valve Prolapse and Rhuematoid Arthritis. Most are autoimmune diseases that run in my family. I’m known as the Autoimmune Queen.
My goal in life is to be an advocate for people with disABILITIES of any kind by doing all I can to be sure that people are judged by who they are and not what they can’t do. Let’s get the word out – being chronically ill doesn’t mean you look sick!
I’ll be writing about health issues, chronic illnesses, medical equipment and supplies and offering support with a bit of humor on the side.
To learn more about me, please visit my Online Business Card, where you’ll also find a list of my other blogs.
[...] About Me [...]
My fiance has Mixed Connective Tissue Disease which is a mixture of several Rheumatoid arthritis related diseases. Like you, she is a tough lady and refuses to let it get her down. It is good to meet someone like you who is looking to make a difference in other peoples lives to help them to have a better quality of life. In the midst of our pain, we can make a difference. When we are weak, He is strong!
Jeff Iversen’s last blog post..Diet Soda Makes You Fat
Dear Webmaster,
I hope you are doing well. I came across your site http://mychroniclife.com/ while doing some browsing. I must say, you have done remarkable work there. The content on your site is somewhat related to the subject of my sites. I am hereby offering to buy text-links on your site.
Do come back to me on this if you would like to hear more.
Waiting to hear from you,
Jimmy.
I got here through Blog365 and I really admire your courage
God bless you
I came across this by chance and, honestly, I’m really impressed by everything you’ve written. I’m fairly new to MG, it’s been a little over a year for me, and I’ve looked through everything you’ve said with admiration and hope for myself. Thank you for everything you’ve said, even if it doesn’t feel like you’ve said much. You have.
Little Miss Greedy’s last blog post..Do You Honestly Expect Me To Believe That We Can Ever Be The Same?
You might be interested in listening to the comments of a 13 year old boy with Asperger Syndrome about his recent diagnosis of Myasthenia Gravis.
While the podcast entitled “Special Feature Interview with Douglas Giesel and An Update Interview with Lewis Schofield” is mostly autism-based, Lewis does comment on his MG. His words are very inspirational.
Midnight In Chicago puts out these free audio podcasts, and they can be listened to at http://www.mic.mypodcast.com
I’m so glad I found your site. I too have RA, was diagnosed in my 20s (now 40). I’d love to exchange links as I blog about comfortable, stylish shoes. Many of my readers have autoimmune or chronic illness and would be interested in your site.
Blessings,
Kirsten
Enjoyed your conference today on blogging through IIAW. Thanks for all you do. As soon as I get my blog up and running, I will give you a shout and ask you to have a look! You are an inspiration.
Blessings,
Maureen
I understand the autoimmune queen comment. When my rheumy called me on my 33 birthday to tell me I had lupus, mixed connective tissue disorder, reynaud’s, Sjorner’s and Celiac. She told me that “autoimmunes get lonely and they tend to bring friends”
God bless
Heather L
O my gosh, I am finally meeting someone online with myasthenia gravis! I was diagnosed in 1988, have had thryoid problems since the age of 6, and now fibro. I work with a team of disability specialtists who assist persons who disabilities travel and particularly cruise. OMG, I feel like I have met a new friend! Sandy Wheeler
I was diagnosed around 2001 with inclusion-body myositis, diastolic dysfunction, and type II diabetes. I had had high blood pressure and sleep apnea for years. I even had to spend a few years on supplemental oxygen as the doctors tried to figure out what was happeneing to me. I have had to learn hard lessons as to how to survive, but I’m doing it. I went on Soc. Sec. disability and live a very full life now with lots of great friends, especially here online. I am leaving in a few weeks for 2 months in California and will travelling cross-country on Amtrak! Believe me, this is a BIG deal for me. But it can be done with a little research and preserverance. Life goes on with us or without us. Might as well make it the best one you possibly can!
I just want to say that I have had many issues with illness most of my life, but more recently in the last 10 years since 2001 more so. I lost my vision from JDRF, which is Juvenile Diabetes, type 1, and at the same time had to go on kidney dialysis, 3 times a week for 4 hours a day for 3 1/2 years, until a dear friend gave me one of his kidney’s, I am not perfect, and my vision will never come back, but I turned my lemons into lemonade, I am an advocate for the blind and kidney patients, and I also own a travel agency that offers independent travel to all but specializes in the blind traveler. God works in mysterious ways!