Comments on: About http://mychroniclife.com A Health Blog By Someone Who Knows Thu, 02 Feb 2012 04:35:45 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Lurquizo http://mychroniclife.com/about-2/comment-page-1/#comment-49799 Lurquizo Tue, 29 Nov 2011 19:47:31 +0000 #comment-49799 I was diagnosed around 2001 with inclusion-body myositis, diastolic dysfunction, and type II diabetes. I had had high blood pressure and sleep apnea for years. I even had to spend a few years on supplemental oxygen as the doctors tried to figure out what was happeneing to me. I have had to learn hard lessons as to how to survive, but I'm doing it. I went on Soc. Sec. disability and live a very full life now with lots of great friends, especially here online. I am leaving in a few weeks for 2 months in California and will travelling cross-country on Amtrak! Believe me, this is a BIG deal for me. But it can be done with a little research and preserverance. Life goes on with us or without us. Might as well make it the best one you possibly can! I was diagnosed around 2001 with inclusion-body myositis, diastolic dysfunction, and type II diabetes. I had had high blood pressure and sleep apnea for years. I even had to spend a few years on supplemental oxygen as the doctors tried to figure out what was happeneing to me. I have had to learn hard lessons as to how to survive, but I’m doing it. I went on Soc. Sec. disability and live a very full life now with lots of great friends, especially here online. I am leaving in a few weeks for 2 months in California and will travelling cross-country on Amtrak! Believe me, this is a BIG deal for me. But it can be done with a little research and preserverance. Life goes on with us or without us. Might as well make it the best one you possibly can!

]]> By: Sandy Wheeler http://mychroniclife.com/about-2/comment-page-1/#comment-14378 Sandy Wheeler Thu, 20 Aug 2009 12:39:03 +0000 #comment-14378 O my gosh, I am finally meeting someone online with myasthenia gravis! I was diagnosed in 1988, have had thryoid problems since the age of 6, and now fibro. I work with a team of disability specialtists who assist persons who disabilities travel and particularly cruise. OMG, I feel like I have met a new friend! Sandy Wheeler O my gosh, I am finally meeting someone online with myasthenia gravis! I was diagnosed in 1988, have had thryoid problems since the age of 6, and now fibro. I work with a team of disability specialtists who assist persons who disabilities travel and particularly cruise. OMG, I feel like I have met a new friend! Sandy Wheeler

]]> By: Heather L http://mychroniclife.com/about-2/comment-page-1/#comment-8477 Heather L Tue, 03 Feb 2009 04:26:24 +0000 #comment-8477 I understand the autoimmune queen comment. When my rheumy called me on my 33 birthday to tell me I had lupus, mixed connective tissue disorder, reynaud's, Sjorner's and Celiac. She told me that "autoimmunes get lonely and they tend to bring friends" God bless Heather L I understand the autoimmune queen comment. When my rheumy called me on my 33 birthday to tell me I had lupus, mixed connective tissue disorder, reynaud’s, Sjorner’s and Celiac. She told me that “autoimmunes get lonely and they tend to bring friends”

God bless
Heather L

]]> By: Maureen http://mychroniclife.com/about-2/comment-page-1/#comment-3493 Maureen Thu, 11 Sep 2008 20:11:39 +0000 #comment-3493 Enjoyed your conference today on blogging through IIAW. Thanks for all you do. As soon as I get my blog up and running, I will give you a shout and ask you to have a look! You are an inspiration. Blessings, Maureen Enjoyed your conference today on blogging through IIAW. Thanks for all you do. As soon as I get my blog up and running, I will give you a shout and ask you to have a look! You are an inspiration.

Blessings,
Maureen

]]> By: BarkingDogShoes http://mychroniclife.com/about-2/comment-page-1/#comment-2717 BarkingDogShoes Wed, 27 Aug 2008 19:58:05 +0000 #comment-2717 I'm so glad I found your site. I too have RA, was diagnosed in my 20s (now 40). I'd love to exchange links as I blog about comfortable, stylish shoes. Many of my readers have autoimmune or chronic illness and would be interested in your site. Blessings, Kirsten I’m so glad I found your site. I too have RA, was diagnosed in my 20s (now 40). I’d love to exchange links as I blog about comfortable, stylish shoes. Many of my readers have autoimmune or chronic illness and would be interested in your site.
Blessings,
Kirsten

]]> By: Thomas D. Taylor http://mychroniclife.com/about-2/comment-page-1/#comment-2183 Thomas D. Taylor Fri, 08 Aug 2008 16:06:06 +0000 #comment-2183 You might be interested in listening to the comments of a 13 year old boy with Asperger Syndrome about his recent diagnosis of Myasthenia Gravis. While the podcast entitled "Special Feature Interview with Douglas Giesel and An Update Interview with Lewis Schofield" is mostly autism-based, Lewis does comment on his MG. His words are very inspirational. Midnight In Chicago puts out these free audio podcasts, and they can be listened to at www.mic.mypodcast.com You might be interested in listening to the comments of a 13 year old boy with Asperger Syndrome about his recent diagnosis of Myasthenia Gravis.

While the podcast entitled “Special Feature Interview with Douglas Giesel and An Update Interview with Lewis Schofield” is mostly autism-based, Lewis does comment on his MG. His words are very inspirational.

Midnight In Chicago puts out these free audio podcasts, and they can be listened to at http://www.mic.mypodcast.com

]]> By: Little Miss Greedy http://mychroniclife.com/about-2/comment-page-1/#comment-901 Little Miss Greedy Wed, 11 Jun 2008 20:34:23 +0000 #comment-901 I came across this by chance and, honestly, I'm really impressed by everything you've written. I'm fairly new to MG, it's been a little over a year for me, and I've looked through everything you've said with admiration and hope for myself. Thank you for everything you've said, even if it doesn't feel like you've said much. You have. <em>Little Miss Greedy's last blog post..<a href='http://littlemissgreedy.wordpress.com/2008/06/11/do-you-honestly-expect-me-to-believe-that-we-can-ever-be-the-same/'>Do You Honestly Expect Me To Believe That We Can Ever Be The Same?</a></em> I came across this by chance and, honestly, I’m really impressed by everything you’ve written. I’m fairly new to MG, it’s been a little over a year for me, and I’ve looked through everything you’ve said with admiration and hope for myself. Thank you for everything you’ve said, even if it doesn’t feel like you’ve said much. You have.

Little Miss Greedy’s last blog post..Do You Honestly Expect Me To Believe That We Can Ever Be The Same?

]]> By: sassygeekchic http://mychroniclife.com/about-2/comment-page-1/#comment-824 sassygeekchic Sun, 08 Jun 2008 13:25:10 +0000 #comment-824 I got here through Blog365 and I really admire your courage :) God bless you I got here through Blog365 and I really admire your courage :) God bless you

]]> By: Jimmy http://mychroniclife.com/about-2/comment-page-1/#comment-593 Jimmy Wed, 12 Mar 2008 06:46:17 +0000 #comment-593 Dear Webmaster, I hope you are doing well. I came across your site http://mychroniclife.com/ while doing some browsing. I must say, you have done remarkable work there. The content on your site is somewhat related to the subject of my sites. I am hereby offering to buy text-links on your site. Do come back to me on this if you would like to hear more. Waiting to hear from you, Jimmy. Dear Webmaster,

I hope you are doing well. I came across your site http://mychroniclife.com/ while doing some browsing. I must say, you have done remarkable work there. The content on your site is somewhat related to the subject of my sites. I am hereby offering to buy text-links on your site.

Do come back to me on this if you would like to hear more.

Waiting to hear from you,

Jimmy.

]]> By: Jeff Iversen http://mychroniclife.com/about-2/comment-page-1/#comment-575 Jeff Iversen Fri, 29 Feb 2008 21:05:51 +0000 #comment-575 My fiance has Mixed Connective Tissue Disease which is a mixture of several Rheumatoid arthritis related diseases. Like you, she is a tough lady and refuses to let it get her down. It is good to meet someone like you who is looking to make a difference in other peoples lives to help them to have a better quality of life. In the midst of our pain, we can make a difference. When we are weak, He is strong! <em>Jeff Iversen's last blog post..<a href='http://aiminghigher.blogspot.com/2008/02/diet-soda-makes-you-fat.html'>Diet Soda Makes You Fat</a></em> My fiance has Mixed Connective Tissue Disease which is a mixture of several Rheumatoid arthritis related diseases. Like you, she is a tough lady and refuses to let it get her down. It is good to meet someone like you who is looking to make a difference in other peoples lives to help them to have a better quality of life. In the midst of our pain, we can make a difference. When we are weak, He is strong!

Jeff Iversen’s last blog post..Diet Soda Makes You Fat

]]>