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The Great Outdoors With Chronic Illness

Posted by Connie on Friday, March 5th, 2010 at 12:18 am and is filed under Chronic Illness, Family Life, Food.
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Although I like the great outdoors, having chronic illnesses, makes it unsafe for me to go too far from home, especially where I have no access to a cell phone. Plus, if I’m too far and I need immediate medical care, that’s another reason to feel unsafe.

My best bet to enjoy the outdoors is to be in nature but close to help. A beach is good pick for me, a lake that has access to a main road or a resort that has an area that is just far enough to be quiet and peaceful, but not too far to be unsafe. When I’m in a flare, I’m usually at home in my backyard. We have birdhouses, some trees and a fenced in yard.

I love when my husband grills and we sit at a picnic table to eat. The only problem is that we have a gas grill where it isn’t easy to make smores because we really can’t roast marshmallows. I’ve been bugging my husband to get a firepit so that I can sit outside, relax, feel comfy and eat wieners and smores. It gives me a good feeling to be in the great, be it fake, outdoors.

Suzanne Rogers Days Of Our Lives Star Has Myasthenia Gravis

Posted by Connie on Monday, March 1st, 2010 at 11:52 pm and is filed under Chronic Illness, DisABILITY Advocate.
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Maggie Horton
Image via Wikipedia

Suzanne Rogers, star of Days Of Our Lives, has Myasthenia Gravis. She has played Maggie Horton on the show for more than 20 years. Ms. Rogers has been a performer since she was a child, starting with dancing. She danced so well that she became one of the Rockets.

When her singing talent was discovered, she then became an actress, dancer and singer on Broadway and performed on the Ed Sullivan show. In 1973, she became Maggie Horton on Days of Our Lives when she decided that she wanted a full-time career. In 1984, she was diagnosed with Myasthenia Gravis and went through very debilitating symptoms.

Ms. Rogers wasn’t able to work for one year because of her extreme difficulty with speaking, double vision and problems with eating which caused her to lose a great deal of weight. After receiving the correct treatment including medication, she was able to return to work after going into remission. Her character has Myasthenia Gravis too, so she is able to share this condition with her fans and others.

She continues to inspire people by contacting other people with Myasthenia Gravis and is now the spokesperson for the Myasthenia Gravis Foundation.

Although remission is not the outcome for all people with Myasthenia Gravis, it helps me to see that it is possible. I commend Suzanne Rogers from Days Of Our Lives for speaking out about her condition when she could have hid it.

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Dermatologists Can Diagnose Chronic Illness

Posted by Connie on Sunday, February 21st, 2010 at 11:54 am and is filed under Cancer, Chronic Illness, Health Information, Migraine.
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Dermatologists are an important part of a patient’s medical team because they can diagnose chronic illness. Although many people consider seeing a dermatologist to look younger, for acne treatment or for skin cancer screening only, seeing this type of doctor regularly can help you get diagnosed with serious chronic health conditions in a timely manner.

For example, coarse, scaly skin can be a sign of Lupus, a purplish rash on the stomach can signal Lymphoma, yellowing of the skin is often a sign of liver disease, as is severe itchy skin. Rashes, flaking skin and other skin problems can be assessed by a dermatologist who works closely with your primary doctor and specialists for a diagnosis and treatment plan.

Dermatologists can also help to treat chronic illnesses. Botox is used to treat migraines. Laser treatment is used for Psoriasis and warts caused by immunosuppressants are removed. Once you become familiar with and comfortable with your dermatologist, it often occurs that you will seek out other types of treatments. After all, who doesn’t want to look good? I’d love to avoid waxing my eyebrows since Sjogren’s Disease has made my eye area sensitive, finding a dermatologist who does laser hair removal in Florida would make my day. Although I can’t get botox treatments because of having Myasthenia Gravis, I know a number of people that be thrilled to have a Botox Florida treatment center for migraines.

This is a compensated post. Please see my Disclosure Policy for more details.

Swine Flu Shot Still Necessary

Posted by Connie on Friday, February 19th, 2010 at 11:52 am and is filed under Chronic Illness, Health Information.
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Vacuna influenza / Flu vaccine
Image by alvi2047 via Flickr

Getting a swine flu shot is still necessary. Even though you may not have heard about H1N1 in the news recently or know someone who has it, there is still a threat of getting Swine Flu. The vaccines are out there and are free. There’s no more waiting in line or seeing if you qualify for the vaccine.

For those of us with chronic illness, preventing H1N1 is paramount. Fighting off this virus has been difficult for some healthy people and there have been deaths from it. Since we already have health problems, there’s no need to put ourselves in the position of getting seriously ill.

Call your local health department. You’ll be surprised that there are plenty of Swine Flu vaccines to go around. Take advantage of the free shot. I have a compromised immune system, had the vaccine and had no side effects at all. Same for my husband and 11 year old daughter.

Please consider your health and the health of those around you. The Swine Flu Vaccine is still necessary.

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Extra Pocket Money From Twitter

Posted by Connie on Tuesday, November 17th, 2009 at 11:53 pm and is filed under Chronic Illness, Earn Money.
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This is a Sponsored Post written by me on behalf of Sponsored Tweets. All opinions are 100% mine.

I’ve been taking part in Sponsored Tweets from Izea since it started a few months ago. I earn money by tweeting for an advertiser and by referring people to become members of Sponsored Tweets. Now there’s an easy way to refer Twitter users to advertisers, another way that I can make some extra pocket money.

Here’s the way it works:

  1. I set my price for my tweets. I can rely on the suggested price given to me by Izea based on a number of factors including the number of my followers. I chose to go a little under the suggested price to get more offers, or so I think that’s how it works!
  2. I decide on what tweets I want to send. I like having a choice.
  3. I get paid! Once my tweet is approved, within 24 hours, my account is credited. It does take $50 for me to withdraw my pocket money.
  4. All tweets are listed as being sponsored. I may use #ad or #sponsored on my tweets. There are a number of options to choose from, but all are transparent.

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I can make referrals on Twitter, on my blogs (see the widget on the right) and anywhere else on the interwebs. Now with the new Referral API, I can make referrals to advertisers as well. I can use a twitter list and get information about their twitter grades, how much they charge, etc. With this info I can refer an advertiser and earn money this way too. Want to earn money from Twitter, go ahead and sign up for sponsored tweets
This is perfect for anyone with a chronic illness who uses Twitter to keep in touch with friends.

SocialSpark Disclosure Badge

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Swine Flu Shot Chronic Illness

Posted by Connie on Monday, November 2nd, 2009 at 12:48 am and is filed under Chronic Illness, Health Information.
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I was fortunate to get the Swine Flu shot last weekend since I have fit in the category of having a chronic illness. My husband and daughter had their shots too. My husband got his because of me and my daughter because of her age. I’m relieved to have this done as getting H1N1 is not on the top of my list along with havingĀ  Myasthenia Gravis and other autoimmune diseases.

I’m also on immunosuppressant drugs so I had no fear getting the injection. I’ve heard all the hype against it, but being put on a ventilator to breathe and my doctor being unsure if I can even handle Tamiflu, the drug to take for the Swine Flu, puts it all in perspective for me.

There were no side effects at all, just a slight discomfort where I got the shot. That only lasted a few hours. I was told not to take any medication like Tylenol as it might prevent the vaccine from working. My 1o year old daughter’s arm hurt her for more than a day, but she is getting allergy shots twice a week and her arm is sore from that.

Remember you cannot use the mist if you have a chronic illness or are taking immunosuppressant medications, so get your Swine Flu shot as soon as possible to avoid any serious health problems.

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