Do you think that Disney needs a Disability Adviser? I do and I want to be one!
Most of you know that I am a Disney addict. I’ve been to Disney World at least 300 times. We live close by are Disney Vacation Club owners so we go quite often. Since being diagnosed with Myasthenia Gravis, I have to use a scooter to get around. I can’t walk long distances any more.
I’ve come to learn that although Disney makes most things accessible to people with disabilities there is always room for improvement. I entered a contest where I can take part in my dream job for the day and win some spending cash too.
Will you help by voting for my video here? You can vote every day until September 25th. Thanks in advance!
Michal Savage has reached an all time low by going on a rant about Autism. I’ve posted about this on my other blog Brain Foggles but I want to reach as large an audience as possible with this information. Please do all you can to share this, to write to the advertisers to tell them to drop their ads for Michael Savage’s radio show, Savage Nation, and to ask your local radio stations to drop his show.
Here’s a bit of what I’m writing about so you can see for yourself:
How do you feel about support groups that are centered around a specific illness or health problem? I run a support group for people with chronic illnesses which hasn’t been meeting for a few months due to my being too sick to take charge of things.
I’ll be starting it up again in September and I’m looking for ideas to keep the group positive. I don’t want it to be a pity part but a group where we can find solutions to our problems or at least feel heard and understood. What ends up happening sometimes though is that we have several very lonely people in the group who don’t get out much. The group is their time to socialize which is fine, but it’s also their time to complain.
I can sympathize but I can’t let them control the group and have other people just listening. I’m not good at getting the conversation turned around to another topic. So we usually end up listening and I end up getting worried that the other members are getting annoyed. Our meetings go on too long also because of this. This is difficult for me as I’m there early to set up and then have to stay to clean up. I’m exhausted on meeting days.
Any advice or suggestions? If you are a member of a support group or run one, please let me know some of your ideas.
Hubby is walking away from me with a look of disgust on his face. He just finished telling me that I need to get to bed early. He knows that I’m worried about my appointment tomorrow with the Kidney specialist. He knows I didn’t sleep last night at all and so I slept in today plus took a nap. He knows I’ve been sitting at the computer too long this evening.
I know he’s right on every count, but do I listen? I’m here posting on my blog instead of getting ready for bed. I’m as stubborn as an ox, a ram, a donkey.
But being stubborn when you have chronic autoimmune diseases and complications is a good thing. It keeps me from giving up when times are tough. It keeps me searching for good doctors when I know the doctor I have isn’t helping me. It keeps me researching my symptoms and being assertive with my medical care.
Those of us who are in the chronic illness group need to be stubborn at times.
If you’ve been thinking about blogging, already have a blog but desperately need another one because you’re so addicted that one isn’t enough, or you want a blog on your own domain, get ready for some important info.
Go on over to my other blog, Brain Foggles and check out my contest.
You have a chance to win an SEO optimized Wordpress Blog with one year of hosting, a customized header, your choice of theme, support and technical assistance, plugins, keyword search and help creating a niche. The value is about $125. This is open to everyone, not just those in the USA. The end date for this is May 30th. Don’t wait!
This is a perfect way for anyone with health issues to earn money from home.
I know many chronically ill people who are unable to leave their homes whenever they want due to pain, medication side effects, being unable to drive and just not feeling well. When this happens loneliness can set in. If you are young and your peers are working and have a family of their own it can be difficult for them to make time to visit you. You may not feel well enough for visitors. You may be embarrassed of how your house looks because you’re not able to keep it clean.
Whatever the reasons, being almost homebound or totally homebound is quite common. In the Chronic Illness Support Group I run, this is a very big issue for our members. We have members who are no longer able to come to meetings because of their health issues. I try to keep in touch with them though.
There’s a trend now of people with disABILITIES and chronic illnesses using a computer and the internet to connect with the outside world. Just look around and see how many blogs are authored by people with medical conditions, how many websites and message boards are made for us too.
Having the right equipment for your computer is a must. If you have arthritis you may need an ergonomic keyboard. If you are paralyzed, you may need a head pointer to type. There are so many examples of technology that make using your computer easier or even open up the means of computer usage.
Many of these products are expensive. Some government agencies and non-profit groups provide the technology. If you are looking to buy something for yourself shop around and even tried refurbished. You may be able to find something among used cisco parts, or other companies that sell used equipment if new is too expensive. Be sure to check for a warranty, the company’s customer service ability to work with you and other types of feedback from buyers.
Being online can help you feel that you are a part of society, especially a section of society that understands you.
