It’s hard for me to accept small changes like moving things on my desk, changing my personal schedule or doing my chores in a different manner. But when you’re sick like me you have to learn to go with the flow. Your life is full of unexpected surprises and some of them are not good.
I can feel fine one day and the next end up being unable to do a thing. I can go to the doctor for a checkup thinking everything is fine to find out that my bloodwork showed problems.
When you have a chronic illness that’s how life goes. Some people end up with a lot of hospitalizations. In that case I’m blessed now (not so about 2 years ago). Some people have a lot of flare ups, include me there. These kind of things throw me for a loop still. I hate the uncertainty, the unknown. I’m still working on learning how to accept change, but I think I’ll be working for a long time.
I am an overcomer. I don’t feel like it most of the time, but I am. I get hit by new diagnoses, bad news and tons of health crud. Sometimes I want to crawl under my bed (unfortunately I can’t!), run away, maybe to visit some las vegas hotels or yell and scream.
But with God’s mercy and grace I overcome. I feel God’s love. I feel my family and friend’s love and can rely on their support. I know that God doesn’t give me more than I can handle.
Being chronically ill means that I spend too much time thinking about me. I’m on the verge of becoming a narcissist especially with this new round of medical problems.
When I find myself ranting too much, holding my own pity parties, wanting to set up my home theater lighting and stage a solo show and decide that I need to be the center of attraction it’s time to get a handle on the things.
I need to get over it! Put on my big girl panties. Start living my life to the fullest. Here I come!
I’m all for trying something natural to help you with a sickness or medical condition. But please understand that when you have lots of medical problems and are lots of medications you may not be able to just take something that your doctor doesn’t approve. There may not be studies that prove it works or even if it’s safe. There may be contraindications that my doctors or pharmacist are not aware of. There may be ingredients in herbs or whatever that are not listed or have unknown side effects.
So if you’re peddling herbamacallit, naturalfixit, Ephedrasil Hardcore or vitaminoprin I’m sorry to tell you, thanks but no thanks.
I’m pretty desperate at this point. I’m trying to get energy to be somewhat capable of doing things like stay awake for more than three hours at a time, fold laundry, cook dinner or even carry on a normal conversation without yawning.
I don’t drink coffee. I use decaf tea. I don’t even drink soda. But like I said I’m desperate here. Maybe I should try one of those espresso machines so I can just add the coffee and let it do it’s stuff. I’ll drink a small cup and see what happens.
My luck, I’ll end up with worse heart palpations than I already have and still feel exhausted. A girl’s gotta try.
Medical advice, unwanted, uneducated, annoying, from kind people who care but are driving me nuts - what do I do about it?
I’ve been so frustrated and yes cranky, very cranky and on edge. My emotions are all over the place. This period of not knowing what is wrong with me is making me angry. This sleepiness, inability to go out, drive, move around and now the pain is getting to me real bad.
I don’t want to snap at people who mean well. I’ve shared with them that I’m waiting to hear from the Kidney Specialist. I’ve had tests done and have started some a new medication. But still they feel that this vitamin they saw for sale, this treatment, exercise, technique will help me.
So instead of screaming, I smile and nod my head. I thank them for thinking of me. I half listen to them on the phone. I sometimes find myself falling asleep.
I’ll tell you something though, I don’t answer the phone all the time. I screen my calls. If I do answer and the advice ramble begins, I’ll excuse myself and say that I’m not feeling well.
I am an overcomer. I don’t feel like it most of the time, but I am. I get hit by new diagnoses, bad news and tons of health crud. Sometimes I want to crawl under my bed (unfortunately I can’t!), run away, maybe to visit some 
Medical advice, unwanted, uneducated, annoying, from kind people who care but are driving me nuts - what do I do about it?
