The pain has been getting worse. It hurts when I use my left arm and when I sleep on my left side. I’ve had shoulder pain for years, but this is different. It’s lingering and the one side is much more sore than the other. I’ve mentioned it to my Rheumatologist, who has given me light exercises to do. He’s also given me trigger point injections numerous times.
Since I refuse to take narcotic pain medications, I use Biofreeze to relieve pain and do my deep breathing when it feels like it’s getting overwhelming. I try to remember not to use my left arm to carry anything heavy too. Believe me, when I do by accident, I switch arms right away.
I have a feeling that it’s a rotator cuff injury or something that may require more than the treatment I’m currently using because the pain is not getting any better. As much as I try to push those negative thoughts away, they’re there, just like I would get addicted to pain medications if I took them. I’ve seen this happen too often, even in my own family and it scares me. Plus I don’t like the way I act on narcotics. Thankfully, there are free drug rehab programs that help with this type of addiction. But I won’t take any chances. For now, I’ll continue with the trigger pain injections, the exercises, the gel and the deep breathing. Thank you very much.
This is a sponsored post for drug rehabilitation programs. All opinions are my own. This blog uses affiliate links.
Prompt: 10 Things I Couldn’t Live Without. Write a list of the 10 things you need (or love) most.
My list is related to my chronic illnesses and in no particular order:
- My iPhone – to play games, read email, tweet, stay in touch on Facebook all while I wait in doctors’ offices
- Body Pillow – helps make resting and sleeping more comfy. Takes the pressure off those joints and muscles that hurt and ache.
- Salads – my go to food when I’m craving junk food. I’m not sure what it is about all of those healthy, colorful veggies, but they taste delicious and fill me up. (I try to keep cut up veggies in containers to make a quick salad when I’m not feeling well.)
- B12 Shots – I get a shot every two weeks because my body does not retain B12. This helps increase energy.
- Relaxation and Deep Breathing – used for chronic pain, migraines and general aches and pains. I use this as often as possible since I dislike pain medicine.
- Cup of Tea and Toast- it’s my comfort meal as needed. I drink my tea decaffeinated, with milk and sugar.
- Stuffed Mickey Mouse – he’s with me when I don’t feel well or in the hospital.
- Prescription Medications – I hate to add this to my list, but if it weren’t for them, I wouldn’t be alive.
- My Doctors – I may complain about some of them, but the ones that are still on my “don’t fire” list have listened to me, seen me as a whole person and treated me so I can live my life to the fullest.
- Disney World – my happy place, where I can go when I feel like life is a against me.
It goes without saying, that my family and friends are my life. They are the best support system and I’m blessed to have them. I didn’t put them on the list because I couldn’t imagine life without them.
It’s time for a Myasthenia Gravis flare up of 2011 since it’s summer and the heat and humidity are horrible. I’ve been so thankful that the Myasthenia Gravis has been at bay for a long time with just some normal symptoms. I’ve been going through a stressful time since November of 2010 when my daughter first began having some serious health issues. I thought the stress and going back and forth to her school, to the emergency room and to doctors would have done me in, but except for the normal weakness, fatigue and droopy eyelid, I’ve been pretty good.
But the flare up hit me about two weeks ago. I thought it was just going to be a few days, but as it got worse, I knew it was time to see my neurologist. My symptoms were total body weakness, difficulty walking, swallowing and talking and extreme fatigue. I also started to get the shakes – that’s when my muscles twitch even when I’m resting. I couldn’t even drive. A new symptom I had this time around was coughing every time I ate.
My neurologist knew right away that I was in a bad flare up. The drive to see him wore me out and I wasn’t even driving. I could hardly sit up in the chair and looked like a rag doll. Now I know where that term comes from! (Myasthenia Gravis is sometimes called the rag doll disease.)
My strength wasn’t that bad, but that’s nothing new. I have more problems with stamina than strength, plus the Mestinon was just kicking in as he examined me. But I wasn’t able to maintain my seated position for long, my both eyes were drooping and I was short of breath. My doctor explained that the coughing while eating was a signal that my swallowing was getting worse.
He increased the Mestinon from 120 mgs every 3 hours to 150 mgs every other dose and the Cellcept from 2500 mgs every day to 3000 mgs every day. If my symptoms worsen, I am to call him or go to the ER. If I don’t see any relief in one month, I am to call him.
Do you have a Myasthenia Gravis flare up every summer like me?
Is it possible to get pain relief when you have Fibromyalgia? I wondered that when I was first diagnosed with Fibromyalgia. Finally I had an answer to why I hurt so much all of the time, but my next question to my rheumatologist was, “Can you cure me?” I guess he was used to hearing this quite often, so he explained that he could help me relieve the pain, but that there is no cure to this disease.
He uses various forms of Fibromyalgia Treatments, but first he had to know more about the pain I had and other symptoms. Because I have other medical conditions, he had to take those into consideration with his treatment too. He asked me detailed questions about where I felt pain in my body and the type of pain and when I had it. He asked about headaches, memory problems, feelings of sadness or anxiety and stomach issues.
He also took blood work to test for autoimmune diseases, arthritis and to check my blood count, etc. My treatment wasn’t decided upon in one day, or even one year. He treats me depending on how my symptoms act up and if there are any changes.
Basically though, my pain relief comes in the form of prescription medications and trigger point injections. My doctor also recommends stretching and other mild forms of exercise, relieving stress, and joining a support group. He had prescribed pain medication in the past, but I no longer use it. I’d rather be alert and feel some pain, than feel drugged and not be able to enjoy my life.
This is a sponsored post. All opinions are my own.
The endocrinologist finally found a solution to the low potassium issue I’ve been having, but now I’m constantly fatigued. I can sleep all day and all night. If I try to stay awake, the brain fog is much worse and I can feel myself nodding off.
I’ve been taking Spironolactone along with Potassium supplements. My Potassium level at my last blood test was 3.8. That is the highest it has been in years. I was thrilled! When the doctor saw the improvement I made, he increased the Spironolactone to 100 mgs. twice a day and stopped the Potassium.
I didn’t realize the fatigue I was feeling was related to the increase in my medications until I did a search for side effects on Spironolactone. Now I’ll have to call the doctor on Monday to see if he agrees with me and see what I can do to maintain the normal potassium level that I need. Because of the diagnosis of Myasthenia Gravis, I should be at a Potassium level of 4.0 so this is a serious health concern for me. I don’t want to spend my life sleeping though.
Have you had a problem with fatigue and Spironolactone?